Showing posts with label equipment for children with physical disabilities. Show all posts
Showing posts with label equipment for children with physical disabilities. Show all posts

Wednesday, February 11, 2009

Recreation for all Abilities


As Cyndi Lauper says, "Girls just want to have fun!"   Boys, too.  And we all know that's harder for some kids than others.  Finding physical activities in which our children can participate and excel in is tough, but there are all kinds of places available to help us.  Here are some good starting points:

Sailing -- Boston seems to have some great organizations committed to providing access to people with disabilities.  Andrew's Camp SFAH has adapted a small boat and uses it each summer.  Seating is key.  Kids love it.

Motor-boating -- We use a Tumbleforms chair to adapt our small Boston Whaler so Andrew can ride for hours and sit safely "strapped down." We bring the urinal so toileting is not an issue. We use a life vest with head support which he wears AT ALL TIMES.  He even goes tubing (very slowly) off the back in a round-rubberized model that enables an adult to assist.  Mom says, "Slow down!" Andrew yells, "Faster!"  Everyone loves that EVERYONE can participate.

Swimming -- Even with a good life vest specifically designed to keep his head up, Andrew cannot swim independently.  But we're working on it.  Special Olympics is a goal. Good aquatic therapists can help.  Great cardiovascular exercise especially.  Andrew has been going at least once a week (year round) since he was two.  Loves it.

Skiing -- We've been to Mt. Snow in Vermont and Crested Butte, CO. Most major resorts across the country have adaptive programs.  Mt. Snow even faxed Andrew's file to Crested Butte for us so they had all the equipment and instructional information when we arrived.  Fabulous. Recommend lots of hand and foot warmers, plus duct tape to help hold on to the bar/bi-ski. He loves it, but he gets really cold.  Lots of hot cocoa breaks!

Biking -- Freedom Concepts makes a great bike and I understand some organizations offer scholarships to help  pay for such things.  As he's gotten older, this has become something Andrew actually like to do more.  Unfortunately, it requires someone to walk/run behind him...so we can't use it for family rides.  Still looking for an affordable way to bring him along when the rest of us go out.  

Baseball -- Challenger leagues abound.  So many benefits to being on a "team." Andrew likes to drive his chair around the bases.  We prefer having able-bodied "buddies" push him in a manual chair.  They can also help him bat.  Several years ago, Andrew decided to stop playing so he could continue his theatre class on Saturday mornings.  We're okay with this, but it is great fun if you can make it work.

Jump-rope -- Wonderful with other able-bodied children.  We tie one end to his wrist and he can "turn" with a partner, while someone else jumps.  Instant inclusion!

Basketball -- We haven't tried it, but there are leagues for all abilities.  Andrew still enjoys playing "3-2-1 shoot" in the driveway.  A partner counts down "3-2-1" and then Andrew pushes the ball off his lap...it dribbles onto the pavement and the partner picks it up and shoots it.  If he/she scores, it's Andrew's point.  So much you can do with this, really.

Playgrounds -- Boundless Playgrounds rock!  Need I say more?

Wheelchair Races -- Now doesn't this look like fun?!?

What do you do to make sure your kids "get in the game?"

 

Tuesday, December 16, 2008

DME Equipment


We've tried countless pieces of equipment over the past 12 years to not only transport Andrew, but also increase his ambulation, muscle strength and flexibility, access to the out of doors, and overall postural support. Today, our DME representative is visiting to talk with us about beds, since Andrew is getting too tall for the twin-from-a-bunkbed-set he's currently using.

It's cumbersome to research, pay for, recoup insurance and the like; however, in our case, the benefits have always been worth it. Except for the Rifton Pacer walker, which was simply too difficult for Andrew to propel, given his limited lower range, each of the following things has been helpful at some extended period of Andrew's development.

Hart Walker (pictured above with Mr. Christmas), Rifton Prone Stander, Permobil power wheelchair, Quickie push chair, Convaid travel chair, ceiling list from Patient Lifts of New England (now runs from Andrew's bed/where we change him) into toilet and shower, Rifton shower chair (we no longer need this now that we use the lift), Rifton tub chair (we later used this in a canoe even!), Freedom Concepts bicycle, Cascade DAFOs, Tumbleforms wedge (gives Andrew "tummy time" while watching TV so he can develop upper body strength and head control), "Special Needs" Baby Jogger, Tumbleforms seat (we use this on our motor boat), and probably more I'm forgetting. I'm also currently investigating a new stander and bed, as I said, so let me know if you have any suggestions, please.

Happy shopping!