Botox for CP

Andrew is scheduled to receive his first botox shots two weeks from today.  We're trying to avoid muscle-lengthening surgery to help loosen hamstrings.  His hips appear to be fine; however, he's grown so much and the muscles aren't keeping pace with the bones.  His legs are so tight he can no longer use his prone stander and is having difficulty standing to help with transfers to the toilet and his wheelchair.  We're hoping to see benefits from the botox.

Andrew is not concerned about the injections; however, I'm still really apprehensive.  There are obviously risks involved with botox.  Although our doctor is not concerned, I still have fears about side effects.  Secondarily, I know the shots are painful and that it will be a lot of work tomanage all the additional stretching that's required in order for this intervention to really be effective.

Do you or someone you know have experience with botox in the leg muscles to help with CP?  We're eager to load up on all the information we can get and gain advice with anyone who has it.    Please pass this post along if you know someone who can share.